This is the second Biobank perspectives newsletter with current issues in biobank ethics and law from the Centre for Research Ethics & Bioethics (CRB) and BBMRI.se. In this issue you can read more about a new international research collaboration on genetic risk information. We give you an update on the new Swedish law for registers for research on the health implications of heritage and environment that makes it possible for the LifeGene project to continue. The EU Data protection regulation is on the way and we give you some information on the legislative process. We also present recent publications from our group.
We hope you find this newsletter useful!
Anna-Sara Lind, Editor, Associate Professor of Public Law
Josepine Fernow, Co-ordinator
Centre for Research Ethics & Bioethics (CRB)
SE-751 22 Uppsala