Conference on nonparticipation in public health and epidemiological studies – Stockholm 11 November

Why don’t they respond to our questions?

November 11 the Swedish Research Council for Health, Working Life and Welfare (FORTE) is organizing a conference focusing on non-response bias, representativity and alternative ways to collect data in epidemiological studies.

Participation rates in public health surveys and epidemiological studies are declining. Large numbers of nonparticipation are not necessarily problematic. However, in many studies those who participate are not representative for the population from which the sample was drawn. The aim of the conference is to illustrate problems concerning nonparticipation in public health and epidemiological studies. When and why is nonparticipation problematic? In what way can we act in order to increase participation rates? Are there alternative and more efficient ways to collect data?

The conference is aimed at researchers within relevant areas, statisticians, investigators and practitioners within the public health sector, together with players from private investigation business.

Speakers include Kenneth J. Rothman, Research Triangle Institute and RTI International, Bengt Järvholm, Umeå university, Lauren Lissner, University of Gothenburg, Mats Thorslund, Karolinska institutet, Marika Wenemark, Folkhälsocentrum at Landstinget i Östergötland, Per-Olof Östergren, Lund university.

The conference will be held in English at Pelarsalen, Norra Latin, Drottninggatan 71B, Stockholm on 11 November 2013 09.30-16.00.

The conference is free of charge.  Link to registration

Link to information about the conference at FORTE


Registration and coffee

Conference opening

Are non- responders a big problem, a small problem or not a problem at all?
Kenneth Rothman Abstract (PDF)

The respondent’s perspective in epidemiological studies
Marika Wenemark Abstract (PDF)

Lunch at Folkets Hus

Tracing biases while monitoring the obesity epidemic
Lauren Lissner Abstract (PDF)

Studies in different social groups/nonparticipation, representativity and alternative data collection methods
Per-Olof Östergren Abstract (PDF)


Ethical perspectives on methods to get high participation rates in research
Bengt Järvholm Abstract (PDF)

Impact of sampling and non-response bias on health outcomes in studies of the oldest old
Mats Thorslund Abstract (PDF)

Concluding remarks

Link to information about the conference in Swedish where the program is displayed